Design a site like this with WordPress.com
Get started

Wednesday, August 2, 2017

Pyper is discharged and goes home. She came home on oxygen, and they have been trying to wean her off it ever since, being somewhat successful when she is awake, but her level drops quite a bit when she sleeps.  They never identified the exact cause, but had assumed at the time that she had gotten some sort of virus that would eventually clear up.

Since they had not been able to wean her off the oxygen for several weeks, we had sensed there was more going on, and pushed to get her tested for other things, as we were concerned she was not developing correctly, not enough weight gain (about 10 lbs at 3-1/2 months old), not seeming to respond as much as maybe she should be, her eyes were not tracking together and she did not seem to focus on much and looked off to the distance often, and lastly, she seemed to clench her fists quite a bit, almost constantly.

Because of this, some outpatient tests were done and we found out she has the following:

She has a sub-mucus cleft palette  (They will wait to repair if needed due to nasal talking later in life.)

She has a hole in her heart, but they will wait to see if it grows together or creates issues that require a repair later.

Advertisement

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: